Dr. Seema Girija Lal

Articles

KERALA DISABILITY POLICY – EXPERIENCES AND SUGGESTIONS

October 30, 2024

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In the past two decades, the perspective on disability has undergone a significant shift. Where disability was once approached with a “fix-it” mentality, we now recognize it as part of human diversity—an acknowledgment that reflects a broader understanding of human rights and the individual differences each person brings. As a mother of two, a psychologist, and a practitioner in the field of mental health and special education for over 20 years, I have witnessed firsthand the nuanced challenges faced by families, especially mothers, as they navigate systems that impact their children with disabilities. Through my experience with families and professionals working with children who have both physical and neurological differences, I have developed an appreciation for inclusive education policies that not only recognize but embrace diversity and advocate for the unique needs of all students.
A central aspect of this journey has been the shift from focusing on equality to pursuing equity in education. Recognizing that equality and equity are not synonymous is essential; while equality assumes uniform access, equity requires adapting support based on individual needs. This shift highlights the importance of inclusive education policies that move beyond superficial equality to genuinely support each child based on their specific needs and abilities.
Understanding the Biopsychosocial Model in Disability
The biopsychosocial model, a perspective that combines biological, psychological, and social factors, provides a comprehensive framework for approaching education and disability policies. It respects the diversity of human experiences, acknowledging that factors affecting a person’s physical and mental health can also shape their educational experience.
From a biological standpoint, the model considers the range of developmental changes a child undergoes from conception through the first 18 years— a period in which brain growth, neurological development, and physical maturation occur at varying rates and in diverse forms. However, education is not solely a biological endeavor; it is a psychologically and socially transformative process as well. The biopsychosocial model appreciates these changes and how they influence a child’s interaction with the world around them. At home, parents act as educators long before a child enters a formal classroom, imparting knowledge and values. Thus, parental education is a critical starting point, not only to equip parents with the information they need but to create a foundation that enhances a child’s holistic development.
Parental Education: A Foundational Step
In most societies, education officially begins within school settings, but informal education starts from the moment a child is born, if not earlier. For children up to three years of age, learning is generally home-based, with parents as their primary guides. From my perspective, parental education ideally begins before the child’s birth. Knowledge and preparedness for parents can be transformational when raising children, particularly those with disabilities, yet in many systems, this phase remains overlooked. Unlike the detailed preparation required for tasks such as driving a car or managing financial accounts, raising a child often lacks structured, accessible preparation for parents. As a result, parents often find themselves navigating uncharted territory without clear guidance, sometimes facing unnecessary hardships.
Creating an inclusive education system from the earliest stages, therefore, suggests a need for policies that incorporate and promote parental education. If parents are provided with accessible information on child development, neurodiversity, and ways to recognize potential developmental delays or unique needs, they can intervene earlier. These recommendations also recognize the value of multidisciplinary teams, including psychologists, pediatricians, and social workers, to educate and support families during this crucial stage. Having such resources available can prevent unnecessary delays in early intervention, a crucial step in a child’s developmental trajectory, particularly for those who may have disabilities.
Transitioning to Formal Schooling: Educator Preparedness
As children grow, their educational needs become more complex, and they eventually transition from home-based learning to formal schooling. Schools become the center of their learning and development, introducing additional layers of social, psychological, and educational experiences. Teachers, therefore, play a pivotal role in creating inclusive environments where every child, regardless of ability, can thrive. Unfortunately, many educators face challenges in managing inclusive classrooms due to a lack of specific training in working with neurodivergent children or children with physical disabilities.
Rather than focusing solely on the child’s abilities, it is equally essential to assess the educational system’s ability to meet each child’s needs. In this context, policies that mandate specialized training for educators can greatly enhance the inclusivity of classrooms. By providing teachers with foundational knowledge about disability, neurodiversity, and strategies for managing diverse needs within the classroom, schools can foster an environment where children feel valued and supported. Moreover, when policies are crafted to include periodic, comprehensive teacher training programs, educators are better equipped to approach each child’s needs without labeling or isolating them. Instead of viewing students with disabilities solely through a deficit lens, training can encourage teachers to adopt strength-based approaches, recognizing the unique skills and perspectives each child brings to the classroom.
This can have a profound impact on the learning environment. For instance, children who are neurodivergent or have learning disabilities may exhibit behaviors or require accommodations that can initially be challenging for untrained teachers. A teacher who is unaware of these needs may respond with frustration, inadvertently creating a hostile learning environment. However, a teacher who has received training and understands inclusive education can view these differences as an opportunity to adapt their teaching methods, fostering a classroom that supports all children’s learning styles. Policies that encourage collaboration among teachers, special educators, and school psychologists can also create a more cohesive support network for students, reducing the pressure on individual teachers to “handle” children alone.
Moving Beyond Labels to Focus on Eligibility and Strengths
A critical area for policy development is the process of labeling children for the purposes of receiving accommodations. Often, children must be officially “diagnosed” with a disability to access additional support, creating delays and barriers to early intervention. For many families, the process of obtaining a formal diagnosis can be lengthy and daunting, particularly when the child is young, and parents may be hesitant to apply a lifelong label to their child. A different approach, one that emphasizes “eligibility” rather than rigid diagnoses, may offer a more flexible solution. Eligibility-based policies would focus on assessing a child’s unique needs without requiring a diagnosis, thus enabling them to receive support sooner.
An eligibility-focused system could benefit both children and their families. For parents who recognize that their child has additional needs but prefer not to seek a formal diagnosis immediately, this approach can facilitate access to resources without creating unnecessary barriers. For educators and professionals, eligibility policies can simplify the process of supporting diverse learners, shifting the focus from identifying deficits to promoting strengths. This change may also promote a shift in perspective within the educational system, where the emphasis is less on labeling a child and more on empowering them with the resources they need to succeed.
Establishing Core Pillars in Inclusive Education Policy
Creating robust policies around inclusive education may benefit from focusing on four key pillars: Promotion, Prevention, Protection, and Prognostics. These pillars can provide a structured approach to designing policies that address each stage of a child’s educational journey.
1. Promotion of Inclusive Knowledge and Practices
Policies that promote knowledge and understanding of inclusive practices are foundational to building a supportive educational environment. Public awareness campaigns, school-based workshops, and media outreach can educate parents, teachers, and students about the importance of inclusive education. Policies can encourage or incentivize schools to publicly display information about inclusive education rights, such as the Right to Education (RTE) and Rights of Persons with Disabilities (RPD) Acts, at admission centers. By making information accessible and visible, families and educators become more aware of available support and resources, creating a more informed and inclusive community.
2. Prevention of Exclusion and Isolation
Preventative measures within inclusive education can play a significant role in ensuring all children feel welcome and supported in their school environment. Inclusive efforts involve not only children with disabilities but also their neurotypical peers, helping them understand and support their classmates. By cultivating a collective awareness and understanding of disability and neurodiversity, educational environments can prevent the formation of exclusionary practices that may arise from misunderstanding or bias.
Prevention-focused policies could promote inclusive classrooms by providing regular training for teachers, creating inclusive school curriculums, and encouraging collaborative teaching methods. Such policies may also promote social skills training for all children, helping to build empathy and cooperation among students. These preventative efforts ultimately work towards dismantling disabling environments that limit children’s growth and participation in their communities.
3. Protection through Accommodations and Accessible Resources
Protection-focused policies provide practical support by ensuring that accommodations and accessible resources are available to those who need them. For instance, policies could outline standardized accommodations for children with disabilities during exams, such as extra time, alternative formats, or assistive technology. Additionally, policies that require schools to provide accessible learning materials, both physical and digital, can help create a more equitable educational environment.
Quick and effective resolution mechanisms for addressing concerns raised by parents or educators also play an essential role. Establishing toll-free helplines, district-level support committees, and designated resource coordinators can provide much-needed support for families navigating the education system. Policies that prioritize a clear, accessible process for requesting accommodations and resolving issues can prevent parents from feeling overwhelmed or compelled to leave the system due to a lack of support.
4. Prognostics: Preparing for Life Beyond Schooling
Inclusive education policies benefit from considering the future trajectory of students, not only focusing on academic achievements but also exploring pathways for personal growth and career readiness. Assessments that highlight students’ strengths, interests, and skills can provide valuable guidance to families and educators when planning for the future. Rather than solely emphasizing overcoming deficits, these assessments can help students build confidence by identifying areas where they excel.
Career guidance, mentorship programs, and exposure to diverse vocational opportunities may also be recommended as part of inclusive education policies, helping students and families navigate life beyond school. By establishing policies that address the needs of students as they