Introduction:
In an effort to ensure safe and effective therapy for children diagnosed with specific disabilities in Kochi, frustrated and concerned parents have come together to create the 'Together We Can' group. Their primary objective is to promote safe and healthy therapy practices in centers that cater to children who face challenges in communication and reaction.
Challenges and Triggers:
The formation of this group was triggered by distressing incidents, including a child's arm being broken during an occupational therapy session and parents being denied access to therapy sessions. Many parents, often afraid that their children may lose access to therapy, do not voice their concerns. They spend sessions sitting outside, anxious about their child's experience and progress.
The Need for Parental Involvement:
Parents argue that they need to be actively involved in their children's therapy. They stress the importance of learning how to handle their children when they become hyper or uncooperative. They propose the idea of having glass enclosures that allow them to observe therapy sessions, emphasizing that they need training to assist their children effectively.
Issues of Transparency:
Padma Pillai, a parent, points out a lack of transparency in the system, with concerns about the qualifications of therapy professionals. In her experience, her child had a traumatic encounter at a therapy center, which took nearly a year to overcome. She highlights the need for parents to understand how to interact with their children effectively.
The Role of Autism:
Children with autism and other special needs often struggle with communication, making it challenging for them to convey what they are learning during therapy sessions.
Expert Opinion:
Psychologist and special educator Seema Lal emphasizes that the current methodology in many therapy centers is flawed. She suggests that parents should be allowed to observe therapy sessions to learn how to support their children effectively at home.
Conclusion:
The 'Together We Can' group in Kochi is advocating for transparency, safety, and parental involvement in therapy sessions for special needs children. Their mission is not only to ensure that therapy is effective but also to empower parents with the knowledge and skills they need to support their children's development. In doing so, they are taking a significant step toward creating a more supportive and inclusive environment for these children and their families in Kochi.